Thursday, July 21, 2011

IPAD



To IPAD or not to IPAD is the question?????

IPAD it is! We have come to the decision that we would like an IPAD for Zane. His therapist has been using the IPAD with him during his sessions and he really seems to become alert and responsive to it. He love the bright colors and the sounds that come from it. One of his favorite apps is TOMCAT.





We did find out that he doesn't really care for Thomas the Train. He made that known after a bunch of whining went on. As soon as she turned it he was fine again. It's funny how these kids can show that they don't like something without any spoken words.

Today we put in for two different contests that are giving away free IPAD's to special needs children. Cross your fingers everyone and hope that Zane is a winner.

Wednesday, June 15, 2011

Meet Gary!



Meet the newest member of the Treguboff household. This is Gary! Yes, I know we name our dogs old man names but we can't resist. Gary is a 3 month old Pug. We have been looking for quite some time for a playmate for Hank. Hank and Gary seem to be getting along really well except I am realizing that Gary may be the alpha male. Hank is such a calm laid back kind of dog. We keep telling him not to let Gary walk all over him. He has yet to change that. :)

Friday, May 6, 2011

Flip 4 Zane Photos!



Here is a picture of all the people that participated in Zane's fundraiser. It was an awesome event that raised over $10,000 dollars. I can't begin to explain the gratitude that I feel towards each and everyone of these people. There are also some people that are not pictured due to work and other prior engagements that deserve the same thanks.

Thank you All!


Wednesday, April 27, 2011

My Baby is in the Paper!


Zane had his first interview last Thursday to promote his fundraiser "Flip 4 Zane". So far his fundraiser participants have raised over $4000 dollars for his specialized therapy. It overwhelms me with emotions to know that so many care for my little guy. It brings us hope that possibly one day we may be able to get him to sit on his own. Here is the link to his article that was in our community newspaper.

WEST VALLEY VIEW

Monday, April 25, 2011

I HEART FACES (Animal Face) Challenge!



Our stubborn but ever so cute Boston Terrier! Say hello to Hank! I thought it would be fun to capture his human personality with this cute little tie. I also wanted to emphasize his charm with a pair of women's legs because really what girl can resist his cute face. :)

Thursday, April 21, 2011

FUNdraiser Time!



FLIP 4 ZANE

Please visit the link above! My gym is putting on a wonderful fundraiser for my son Zane. This is to help us raise money for Anat Baniel Therapy. We hope one day with this therapy that he will be able to achieve the goal of sitting. This small goal will help tremendously with his daily care. If you would like to donate their is a donation button at the top of the blog post in yellow through the link provided. Thank you for all your help!

Saturday, March 19, 2011

On the Paleo Wagon, again!

So my own personal paleo challenge has begun. It is time! I have gained 15 pounds over the holidays and my lack of exercise is starting to show. Yesterday was the first day and boy all I can is it is tough. I sooooooooo want a cookie really bad but I must say no.

Today is no better but as the days go on it will get easier. I am on day two and I have not had any processed sugar, dairy, or grains. All meat and veggies for the next two months. Hopefully after the two months I can keep my sugar wants away.

Cross your fingers everyone! This is going to be a long road!

Monday, March 14, 2011

I HEART FACES (Sun Flare) Challenge!




Sun Flare photo entered into the weekly "I Heart Faces" photo challenge. This photo was taken off the beach of Mexico during sunset.

Wednesday, March 9, 2011

No Donation Button! Booo!

We unfortunately had to remove our donation button off of our Smiles for Zane blog. After going round and round with Paypal, it has come to our attention that we must be stated as a Non-profit. In my mind we are but the proper paperwork must be in their possession. We will be working on getting this done but it is an expensive and lengthy process.

So for those of you who have asked where they can donate, please hang on. I am going to speak with my bank this week to figure out if there is something that can be done through them.

Saturday, February 26, 2011

IPPC Fabulous!



This past week has been a roller coaster of emotions. I was honored for the second time to attend a conference specifically geared towards Pediatric Palliative Care.

IPPC is the organization that puts on retreats across the country to train health care providers on how to change or make palliative care happen in their institutions. It was Phoenix Childrens Hospital's turn to show what palliative care could do and how important to us as families it is.

There were social workers, physicians, chaplains, child life specialists, nurses, nurse practioners, and many others among the participants. Also there were family members that were in attendance from different organizations such as PCH, Hospice of the Valley, MiSS Foundation, Ryan House, and many others. It was so nice to see the diversity from all the groups that attended.

I know this experience for the families was an emotional one. Many tears were shed during the sharing of our personal experiences with the care that our children have recieved. It was nice to have a voice in this conference and to confront the people that take care of our children. They were able to hear the bad things along with the good things. This is not always allowed or so embraced in a healthcare setting. At this retreat it was. You could see the hungar in their eyes towards us as family members, to hear our stories and experiences.

My hope for this conference is that it will shed light on the situations that these health care professionals face on a day to day basis. I hope that things will change as far as the care our children recieve. I hope that these professionals will imbrace not only the sick patient but the family that comes along with it. It seems to me that everyone that participated in this retreat wants to make that happen and I couldn't be happier.

Now what to do and where to begin with all this new found information at these institutions. Only time will tell. It will be baby steps but with all the eager faces that were there to make change, I am confident it will happen.

Tuesday, February 22, 2011

So Thoughtful!



Thank you Miss Maddy from Indiana for writing a sweet note to my son Zane. I read it to him and he enjoyed it with a huge grin on his face. :)

Thursday, February 3, 2011

Caden's Tiger!



Caden came home yesterday full of excitement because he just couldn't wait to show me his drawing. "Look mom, it's a tiger!" He yelled. "I made it for my brother Zane.?" For a 5 year old I think he did pretty darn good as long as you ignore the fact that the tiger has five legs. :) Caden is such a handful but can be so sweet at times. Love that boy!

Friday, January 28, 2011

Donation Button!



We are excited to announce that we have just added a donation button to our Smiles for Zane blog! If you would like to make a donation all you need to do is click on the donate button and it will take you to a secure paypal website. All donations will be going towards gas, cd's, accessories, postage, and photography equipment. Help us put smiles on these families faces! :)

Friday, January 21, 2011

Smiles for Zane!


Smiles for Zane is a non-profit foundation in the making! This foundation provides free photo shoots to families with special needs or medically fragile children. Since this mama is not crafty, I wanted to figure out a way to give back. Many people have helped us along the way in our journey with Zane. What better way to give back to families then to have a picture of their child to treasure. Go check out Smiles for Zane!

Sunday, January 9, 2011

Just wild!



This is one of my favorite pictures of Zane. It was taken when he was about a year and a half old. Look at that hair! Unfortunately it is no longer because he tends to get a lot of knots in the back therefore we have to keep it short. I can always remember how it used to be though with this photo. :)