Saturday, February 26, 2011
This past week has been a roller coaster of emotions. I was honored for the second time to attend a conference specifically geared towards Pediatric Palliative Care.
IPPC is the organization that puts on retreats across the country to train health care providers on how to change or make palliative care happen in their institutions. It was Phoenix Childrens Hospital's turn to show what palliative care could do and how important to us as families it is.
There were social workers, physicians, chaplains, child life specialists, nurses, nurse practioners, and many others among the participants. Also there were family members that were in attendance from different organizations such as PCH, Hospice of the Valley, MiSS Foundation, Ryan House, and many others. It was so nice to see the diversity from all the groups that attended.
I know this experience for the families was an emotional one. Many tears were shed during the sharing of our personal experiences with the care that our children have recieved. It was nice to have a voice in this conference and to confront the people that take care of our children. They were able to hear the bad things along with the good things. This is not always allowed or so embraced in a healthcare setting. At this retreat it was. You could see the hungar in their eyes towards us as family members, to hear our stories and experiences.
My hope for this conference is that it will shed light on the situations that these health care professionals face on a day to day basis. I hope that things will change as far as the care our children recieve. I hope that these professionals will imbrace not only the sick patient but the family that comes along with it. It seems to me that everyone that participated in this retreat wants to make that happen and I couldn't be happier.
Now what to do and where to begin with all this new found information at these institutions. Only time will tell. It will be baby steps but with all the eager faces that were there to make change, I am confident it will happen.
Tuesday, February 22, 2011
Thursday, February 3, 2011
Caden came home yesterday full of excitement because he just couldn't wait to show me his drawing. "Look mom, it's a tiger!" He yelled. "I made it for my brother Zane.?" For a 5 year old I think he did pretty darn good as long as you ignore the fact that the tiger has five legs. :) Caden is such a handful but can be so sweet at times. Love that boy!